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Behind the Scenes at HeartShare: What It Means to Be a Caretaker

May 15, 2018

Community, Families, Impact Stories

Being a caretaker holds different meanings for many people. For HeartShare employees, it means more than going through the motions for program participants– it means actually caring about them and their well-being as they would for a loved one.

Elizabeth Delano is the mother of Anne Mary Delano. Anne Mary, now 32 years old, has Down’s Syndrome. She started her journey with HeartShare when she entered HeartShare’s Early Childhood Services Program. She went to a HeartShare First Step Pre-School. For the employees there, Anne Mary’s happiness was as important as her development. “The speech therapists felt that teaching Anne Mary some sign language was the way to go since she had no interest in any type of communication device,” shared Elizabeth. The speech therapists were not only considering how to teach Anne, but also how Anne wanted to learn. “They were kind, caring, and so knowledgeable on how to best care for the families seeking their assistance,” Elizabeth said about the First Step team.

When Anne transitioned into public school, HeartShare was still there for her and her family. Through HeartShare’s Family Support Services Program, Anne participated in “Heels and Wheels” Saturday events. This Respite/Recreation Program gave her the opportunity to go to movies, bowling allies, museums, and more. “She would always come home with a smile on her face,” said Elizabeth.

Anne Mary now resides at HeartShare’s Caruana II Residence in Springfield Gardens. She moved there in 2017. This wasn’t her first residential placement at HeartShare though. At the other residence, the long staircase wasn’t a great fit for Anne Mary’s mobility. Anne’s mother said, “It seemed perfect, but in the end Anne was not able to handle the long flight of stairs in case of an emergency.” HeartShare’s concern for Anne’s safety did not stop them from finding the right placement for her. “HeartShare started looking for another site and was finally successful after a long, hard search,” shared Elizabeth. The commitment that HeartShare makes in supporting their participants is tireless.

The Joseph V. Caruana Residence is home to Laura, Anne Mary, Alexandra and Sade, who have been thriving since they moved there in January 2017. “These women are not just housemates,” shared Residence Coordinator Thomas Hoefel. “They are more like sisters.”

HeartShare also tries to bring the right program participants together. Anne Mary lives with her close friend, Ally, at the Caruana II Residence. “Anne and Ally had been friends since they were enrolled in the early intervention program at HeartShare. The residential team worked hard to find the right candidates to fill the other two beds, and soon Laura and Sade were the new roommates,” said Anne’s mother. The four women of Caruana II have created their own little family. They enjoy going out together for ice cream, concerts, parties, movies, shopping, and more. HeartShare understands the importance of being able to socialize. The HeartShare team takes the time to group the right residents together in order to create a comfortable and happy living situation. Elizabeth said, “It makes me happy and grateful that Anne now has a social life, and is having fun.”

 

 

 

The Direct Support Professionals (DSPs) hired to work with Anne and the other women at the Caruana II Residence really go above and beyond. “They are professional and competent, and understand each woman’s personality, and their needs. They even enjoy a good dance party now and then. Whenever I visit Anne, I can see how well she is cared for,” said Elizabeth. The DSPs take the time to get to know each participant, and they don’t only care for them, they care about them. This is what being a caretaker means at HeartShare.

Elizabeth said, “I will always be grateful to HeartShare Human Services for all they have done for Anne and our family. Our relationship started with Anne’s birth and continued as she grew into adulthood. The staff has been there through the good times and the hard times, and we appreciate their support and advice.” Being a caretaker in this truly loving and empathetic manner is just a part of HeartShare’s mission to nurture and empower children and adults diagnosed with intellectual and developmental disabilities.